Jordin's Journey

Sickle Cell Disease


What is Sickle Cell Disease?

Sickle Cell is an inherited blood disorder that affects the red blood cells. When you have sickle cell your red blood cells become  stiff and stick together in a C like shape (sickle shape). When these cells stick together it causes a sickle cell crisis. This also reduces the blood flow to many parts of the body, which causes damage to the organs in the body. A sickle cell crisis is the most common reason for hospitalization. The pain is very extreme and intense that can last from 1 day to 14 days. These crisis can not be predicted and they vary. There are many complications when having sickle cell disease acute chest syndrome, liver problems, kidney problems, stroke, gall bladder disease, spleen damage, eye problems, and much more. For more information on Sickle Cell and the statistics please visit

CDC Website 


How do you get Sickle Cell?

Sickle Cell is a inherited blood disorder. Both parents would have to be a carrier in order to pass the disease on to the child. A carrier is someone who has the sickle cell trait, meaning they have one gene with sickle hemoglobin and one gene with normal hemoglobin. There are many different forms of Sickle Cell. For more information on Sickle Cell and the different forms of the disease please visit

 Center for Inherited Blood Disorders


Jordin's battle with Sickle Cell

Jordin has been living with Sickle Cell disease her entire life. Her parents found out she had the disease while her mom was pregnant with her. Throughout her life she has battled multiple pain crises, including 4 acute chest episodes causing her left lung to have infarction.  She was recently diagnosed with Cyclic Vomiting Syndrome (CVS), a child with an adnormal inherited gene, like Jordin, may also contribute to this condition. CVS causes Jordin to have migraines and vomitting attacks, which causes her to go into sickle cell crisis at times. Due to her sickle cell she has an enlarged heart and has already had her gallbladder removed. Jordin has to be followed by multiple specialties to keep her healthy. She is treated at CHOC Children's Hospital and has been in and out of the hospital all of her life. In a little as one year she is admitted on a average of 4-5 times, making CHOC her and her families second home. For more information on CVS please visit 

NIH Website